SafeBeat was founded by Jayne Vining in memory of her son Marc who died suddenly from sudden cardiac arrest. Cardiac Arrhythmia Syndromes (CAS) take the lives of approximately 600 young people in the United States each month. These are preexisting but undetected heart abnormalities that can usually be detected by a non-invasive electrocardiography screening, and one out of every 350 children will test positive for an abnormality. SafeBeat offers its life-saving education and advocacy not just to the registered athletes but to any child that has or is signing up for any extracurricular school activities.
In collaboration with All Children's Hospital of St. Petersburg and Holtz Children's Hospital of Miami, the SafeBeat Initiative has screened children in the Hillsborough Country School District of Florida, the eighth largest school district in the United States and will continue to screen children across Florida and into every region possible across America.
- 1 out of every 143 children has a cardiac arrhythmia syndrome.
- 20 children between the ages of 6 & 25 will die today from sudden cardiac arrest caused by a cardiac arrhythmia syndrome.1
- 1 out of every 500 children has hypertrophic cardiomyopathy (HCM) the leading cause of sudden death in all young people.2
- Cardiac arrhythmia syndrome is the leading cause of non-traumatic death in the adolescent athlete and young American population.2
- Hypertrophic cardiomyopathy is the leading cause of sudden unexpected death in those under 35 years of age.3
- Hypertrophic Cardiomyopathy (HCM) is more common in the United States than childhood leukemia, cystic fibrosis, Parkinson’s, Multiple Sclerosis, and ALS combined.4
- Electrical cardiac diseases, such as Long QT syndrome, Short QT syndrome, Brugada syndrome, Lev Lenegre syndrome, Wolf Parkinson White syndrome (WPW), hypertrophic cardiomyopathy (HCM) and arrhythmogenic right ventricular cardiomyopathy (ARVC) can be identified by the resting ECG.5
- Once a cardiac arrhythmia syndrome is detected and 1st and 2nd degree family members are tested, an average of nine additional cases are found.
- Once diagnosed, these syndromes are treatable, and individuals with these conditions can have normal life spans and lifestyles.
- Heart Rhythm Society, www.hrsonline.org
- The Teague Ryan Sudden Child Cardiac Arrhythmia Syndromes Screening and Education Act
- B. Maron et al. “Sudden death in young competitive athletes: clinical, demographic, and pathological profiles.” JAMA.
- The Teague Ryan Sudden Child Cardiac Arrhythmia Syndromes Screening and Education Act , also, B. Maron, “Sudden Death in Young Athletes” New England Journal of Medicine.
- Corrado D, Pelliccia A, Bjørnstad HH, et al.. “Cardiovascular pre-participation screening of young competitive athletes for prevention of sudden death: proposal for a common European protocol. Consensus statement of the Study Group of Sport Cardiology of the Working Group of Cardiac Rehabilitation and Exercise Physiology and the Working Group of Myocardial and Pericardial Diseases of the European Society of Cardiology” Eur Heart J;26:516–20, also in “Preparticipation cardiovascular screening in young athletes” British Journal of Sports Medicine.
EDUCATIONAL MATERIALS FOR SCHOOLS
The following documents are provided to schools as educational awareness pieces to provide to students and parents. Each document will be customized to include the name of the school district, our healthcare provider, and sponsors applicable to the district.